Finding Joy and Contentment in the Ordinary
It is September, which means many things to many people. School starts in September. The fall begins only a few weeks into September. For some, there are birthdays, anniversaries, and events to celebrate. For the few that have been effected by pediatric cancer, this is the month to “Go Gold!” September is the month of… Continue reading Go Gold
Having been in the bereaved parent circle for a while now, I have come across a number of parents that seem to echo similar flaws in today's society when it comes to grieving, in particular, the grief of a parent. I, myself, have felt many of the same things these parents have. Yet, no matter… Continue reading I Am Your Worst Nightmare
It's about 1:00 am. I've been up for 20 hours. So you would think it crazy that I sit here in the dining room, in the still of the night, questioning what we went through nine months ago. And yet here I am. Shaken. Traumatized. Unable to sleep. Tears streaming down my cheeks. For the… Continue reading My PTSD
So I am starting this particular blog like no other. For it's this morning that I really don't know what to say. I just know that I need to write. It's been a very hard few weeks in the DIPG community. And even as I type this, I feel like these words leave my mouth… Continue reading RIP
Julie Beth Little, as we once knew her, left this world on June 17, 2014. Due to an unforeseen illness, a beast of a cancer, her life was taken away as she watched her baby girl slowly fade. Once the life of the party, she now dreads social events and really has to pull all… Continue reading RIP Julie
I'm not sure why. That's usually how I start my thoughts when I begin to write. I don't know why I would share such intimate things. But as I sat here thinking what I was to write, many things popped in my head. Perhaps that is because my mind has not stopped thinking. In fact,… Continue reading Her Last Breath
The Eleventh Hour has come. We stand here, looking at the moment that we really have dreaded since the very night we heard the word "terminal". I've played different scenarios in my head, but there really was no way of knowing what this would look like. When Molly took a turn for the worse a… Continue reading The Eleventh Hour
Life is funny. I suppose funny is the wrong word. Fascinating may be more accurate. There's first breaths taken and last breaths taken all in one moment. I remember being 10 weeks pregnant with Molly and going home for my Grandfather's funeral. I was hesitant telling family during this sad time. But my Mom knew… Continue reading Beauty Among Ashes
I've learned first hand that pediatric cancer is a nasty, miserable business. Not only have we watched our own daughter suffer, but we have encountered so many families on this road, who have their own sweet ones that are fighting the battle. It's easy to see why these families tend to ask, "Where is the… Continue reading Why So Happy?
I remember the night of Molly's diagnosis. We were sitting in the hospital. We had just finished getting the news that not only did she have a tumor, but there is a 0% survival rate. "Your options are radiation to buy more time, palliative care can be set up, or you can do radiation THEN… Continue reading Marriage in the Midst of the Battle
P.S. I love... 